Looks like it was LYME the whole time

Since my last post I’ve been ridiculously sick, and being my stubborn self I still made the decision to go back to work. This past week I was at my breaking point with a low grade fever, through the floor fatigue, tremors, severe GI issues and pain, chronic pain, I could go on …

Lyme has been on the table since the spring of 2014 when this all began with sudden severe allergies followed by Meniere’s, then the intractable migraines with severe neurological symptoms. My test came back negative, and there was so much going on we just moved on. However, my PCP never completely dropped the idea.

At my appointment on Monday when he wanted to test for Lyme yet again I had to hold back a groan. Except this time he wanted to do the Western blot. Last night, Friday, I get the following e-mail from him:

You have antibodies to the organism that causes Lyme disease. Not enough ” bands” to satisfy the criteria for The CDC, but good enough for me and most people who study and treat Lyme disease. The test is not very good, and you have antibodies and a lot a symptoms. I’ll send an antibiotic to your pharmacy. Don’t take it on an empty stomach.

There are likely going to be MANY posts in the future on all the nastiness going on within the CDC and the IDSA regarding Lyme disease. In short most of the handful the doctors who write the guidelines on Lyme for the CDC and IDSA have severe conflicts of interest. Including holding patents on Lyme, having been contracted by insurance companies, and other nasty things. Connecticut even filed a lawsuit against the IDSA1.

The CDC & IDSA madness around chronic Lyme disease and late Lyme made it extremely difficult for me to recognize that I have it. Since my biggest problems were not fatigue and pain.

However, vertigo, severe headaches, neurological issues, constipation, abdominal adhesions, and pretty much everything that has been destroying my life are also symptoms of Lyme.

I’ll hopefully be a bit more articulate and well informed once I’ve had some time to sort this mess out. Both the mess in my body, and the political mess surrounding Lyme. I am just happy it looks like I have a diagnosis.

Mindful Self Care & Kicking Ass

IMG_1049I’ll start with the personal side of this hopefully helpful article. The past week has been filled with me coming to terms with the fact that I am officially disabled. Not by new symptoms, but of the old which I was gritting my …

I’m plugged back into the science journal matrix

IMG_1018Thursday was utterly magical. I was just chilling on my porch when the mailman came and he handed me a letter. It was from my Alma mater, and it contained my Alumni card and instructions on how to get back into the library. …

Lazy Super Salad

FullSizeRenderI need to be on a super healthy nutritious vegan diet. This can mean hours of cooking and/or untasty food, but instead I use easy workarounds to get the best of both worlds. The above salad took me less than 5 minutes …

Physiological Approaches to Mindfulness

urlOur brains are powerful, they are involved in everything that we do. Mindfulness is all about filtering out the noise in our minds, and getting things down to being only this moment. This does a lot for anxiety and other mental health …

How to get approved for Social Security

logo-fb-shareGetting Social Security is a complicated nightmare, however, there are a few key points that have assisted my clients and I in getting them approved for benefits faster.
This is all about your ability to function at work
Loads of diagnoses, medications, and doctors are …

Universal Consent to Exchange Form

consenttoexchangeI have come up with some great files that I just can’t wait to share. These are for anyone to use, I give full permission for editing.

As a part of my job I do a lot of medical forms. In Social Work …

Pain, Trauma & the Brain: Be Mindful of the Whimsy

AAEAAQAAAAAAAARPAAAAJGFlNDliYjFlLTQwNzItNDUzOS1hZWY5LWQ3YTg1ZjAzMDBhNwUnless your Kimmie Schmidt, and you just got out of the bunker you haven’t escaped the craze of adult coloring, and how “mindful” has become the buzz word of the day. Kimmie Schmidt is actually pretty much the embodiment of Mindfulness, in fact …

What do “proven” treatment results mean?

I’ve actually been receiving Botox for Migraine since 12/14, and for me it works very well. The purpose of this article is that study design can be shady and/or flawed regardless of whether or not the treatment is effective.

With migraine studies types of sufferers are rarely separated into groups, …