Ordeal and Surrender

I’m involuntarily taking you on a journey, the same one I’ve been on. It will wind, it will seem pointless at times, though I believe it’s worth it. Ordeal reveals naked truth. It comes through pure vulnerability and surrender. It’s all a …

Grassroots All Stakeholders Healthcare Action Proposal

Please get the link to this page out there. We want all in for this all included project.
The Short Link for this page: http://bit.ly/gashprop

Drafting is occurring on Google Doc feedback welcomed!

Short Link: http://bit.ly/gashdoc

Grassroots All Stakeholders Healthcare
Proposal
By the Chronic Advocate aka …

Understanding Meniere’s & Going Bilateral

Meniere’s Awareness mug by Infinity Creations Company

I’ve been dreading and avoiding writing about this, since well it’s always been my Meniere’s worst nightmare. I’m pretty sure I’m not alone in that, I think most of us with unilateral …

Provider perspective on barriers to improved patient engagement

image source dailykos.com comics

I was thankfully able to catch the MEQAPI chat today, and I ran across the same problem that I typically do in these improving healthcare and patient involvement chats. Healthcare is a nasty and complicated …

Rolling with resistance

Yesterday my world collapsed, and yet everything is where it needs to be. My work doesn’t think I am well enough to fulfill my job duties. I can’t disagree with them. My health is just continuing to deteriorate, and I’m not much closer to any sort of answer or treatment.

I …

Acclimation and Adapting

Earlier this month I realized that I had not really had much improvement in my symptoms after months of antibiotics, I had simply just acclimated to them. I think my fatigue has improved some, though when I looked at the full picture my condition had actually worsened. I had simply …

3am ramblings

My ear decided about an hour ago to start threatening another Meniere’s attack. Between the anxiety that creates and the discomfort sleep is awhile off. I’m trying to just get back into blogging and reconnect. It’s hard because bad news and a bad mood is not something I like to …