Ordeal and Surrender

I’m involuntarily taking you on a journey, the same one I’ve been on. It will wind, it will seem pointless at times, though I believe it’s worth it. Ordeal reveals naked truth. It comes through pure vulnerability and surrender. It’s all a …

Understanding Meniere’s & Going Bilateral

Meniere’s Awareness mug by Infinity Creations Company

I’ve been dreading and avoiding writing about this, since well it’s always been my Meniere’s worst nightmare. I’m pretty sure I’m not alone in that, I think most of us with unilateral …

Provider perspective on barriers to improved patient engagement

image source dailykos.com comics

I was thankfully able to catch the MEQAPI chat today, and I ran across the same problem that I typically do in these improving healthcare and patient involvement chats. Healthcare is a nasty and complicated …

Acclimation and Adapting

Earlier this month I realized that I had not really had much improvement in my symptoms after months of antibiotics, I had simply just acclimated to them. I think my fatigue has improved some, though when I looked at the full picture my condition had actually worsened. I had simply …

WTF is wrong with me

I haven’t been posting because I’ve been very ill. My Lyme treatment didn’t go according to plan. A week ago my doctor yanked me off my antibiotic because I was having a Lupus like reaction. Instead of my low grade fevers resolving with treatment they went up. The last few …

Looks like it was LYME the whole time

UPDATE: It turns out I did not have Lyme Disease. I’m leaving this up for history’s sake. In the future I’m hoping to write a research based articles with some of the difficulties with Lyme diagnosis and treatment. Stay tuned, I’ll post it here when it is done.

 

Since my last …